Wednesday, October 12, 2011

If you don't believe....you gotta read this!!!

First of all...let me just say.....GOD IS GREAT!

Ok, here we go. Today, Wednesday, started off like we have all the other days prior at Dell Children's Hospital.  Vital signs, Cathing Mel, tired, definately not enough sleep for both of us, IV antibiotics, doctors rounding, etc......Mel actually slept in, kinda, until about 11 am.  We went and got lunch downstairs, we even made it back to quickly attend a little Halloween Party they were having for the kids....she got a new costume and goodie bag!  Today was the Urodynamic Study with the urologist...scheduled for 1:00 pm.  They come and get her at 1:15pm.  We were all expecting to see how bad her bladder really was.  After getting her all hooked up....urologist shows up, he wanted to see the test in person (love him).  Let me explain how this test works a little:  they put a catheter in her bladder and leave it there.  Then she is hooked up with EMG electrodes.  Contrast dye was injected at a rate into her bladder.  They take live pictures of her bladder and kidneys during the test itself every so many milliliters.  As her bladder fills with the contrast dye, it is measuring the pressure in her bladder and it also uses EMG to see what her muscles are doing, basically seeing if the brain is signaling the bladder like it should...even though there is a break in the transmission process due to her spinal injury.  Anyways....her bladder last week was only able to hold 40 ml, a "normal" 9 year old bladder should be able to hold about 300 ml.  Her bladder showed to be very small and didn't give like it should, which caused a Grade IV Reflux in her kidney.  Well, we watched and waited.........and waited.....and waited.....and watched.  As they continued to fill her bladder to 100 ml, then 150 ml, then 200 ml.....NO REFLUX is showing up!  I asked...."what does that mean?".  He said I'm not really sure...."there is no reflux and her bladder is able to hold 240 ml of fluid".  He wants to do the test again....we start it all over...all the while Mel is watching Marley and Me on the DVD.  We do it again...wait and watch, etc.  The bladder again is able to fill to over 275 ml and still NO REFLUX into the kidneys.  He says that is not possible.  He then calls for a renal sonogram right then.  He looks at the kidneys that were both filled to dangerous levels of extra fluid, "hydronephrosis".....and it's all gone, except for a very small amount.  No reflux, hydronephrosis gone....nothing!  He can't explain it medically!  I again ask him...."what does that mean?"...he says that means she may not be having surgery tomorrow!  WHAT?  No surgery???  He wants to talk to his partner and the neurosurgeon about these new findings, but he really feels no reason to have the spinal surgery....her body is basically fixed the hydronephrosis and reflux on it's own.  She still has high pressures in her bladder, no biggie to fix probably. 
Soooooooo....we go back to our room and wait patiently for the neurosurgeon to come by and give me the official word on surgery.  He does!  Nope, no one sees a reason for why this happened and no reason to have a big procedure like this at all!  Can you believe it????!!!!  He actually says the words to me...."let's see what we can do to get yall out of here!"  What?????????  OMG, really?

So we have gone from needing a big spinal surgery, losing all hope for future mobility, losing a kidney, down recovering for another month and another 7 more days in the hospital to.......WE ARE GOING HOME! 

Whatever higher power you believe in.....it is alive an well in Melanie!  She is again proving that God has a special plan for her!  He isn't done with her!  We are spending the night at Dell tonight, not sure if tomorrow is really the day of departure...but we definately will keep you posted.  Thank you for all of your prayers!  The Power of Prayer, so God Story, is sleeping well right in front of me....can't wait to get her home!  Love to all!  God Bless!

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